Sepsis Voices with Dr Ron

Meningitis messaging and rash recognition: Meningitis Research Foundation’s Caroline Hughes on effective public health communication

In episode 15 of Sepsis Voices with Dr Ron, UKST’s Founder & Chief Medical Officer is joined by Caroline Hughes, Support Services Manager at the Meningitis Research Foundation, to discuss the links between sepsis and meningitis.

Released following World Meningitis Day on 5th October, this episode sheds light on the interconnectedness of these life-threatening conditions – including the impact on survivors and their families – along with the urgent need for awareness, and how timely intervention can save lives. 

Caroline shares the vital work her organisation does to support individuals affected by meningitis and the global efforts to defeat it, including their involvement in the World Health Organisation’s initiative to defeat bacterial meningitis by 2030.

The episode covers:

• Caroline’s insights into the global burden of meningitis 
• The relationship between sepsis and meningitis 
• The importance of public messaging to raise awareness of the conditions 
• The long term impact of these conditions on patients and their loved ones 
• World Meningitis Day 2024 and how its initiatives are driving awareness globally
• Socioeconomic disparities in sepsis and meningitis outcomes, and the need for improved access to resources 
• How charities like ours are collaborating to promote clear and accessible messaging

Tune in for a comprehensive discussion on the importance of early recognition and the life-saving impact of collaboration in the fight against meningitis and sepsis.

You can learn more about sepsis and the UK Sepsis Trust’s mission at sepsistrust.org, and discover resources on meningitis at meningitis.org. 

Other resources mentioned in the episode: 

Read Lauren’s story: https://sepsistrust.org/sepsisvoices/lauren/ 

Listen to Tilly and Lucy’s story: https://sepsisvoices.podbean.com/e/beyond-the-numbers-illuminating-the-reality-of-paediatric-sepsis/ 

Sepsis survival and advocacy: ‘Bionic’ former MP Craig Mackinlay on adapting to life with disability and driving for change

In episode 14 of Sepsis Voices with Dr Ron, UKST’s Founder & Chief Medical Officer Ron Daniels is joined by former Member of Parliament Craig Mackinlay, for an episode released during Sepsis Awareness Month.

Craig’s story is one of immense resilience. After surviving sepsis, he underwent quadruple amputation and has since turned his experience into advocacy for better sepsis care. Recently appointed to the House of Lords, Craig is now using his platform to push for crucial changes in healthcare that could save lives and improve outcomes for sepsis survivors.

The episode covers:

• Craig’s personal experience with sepsis and the challenges of adapting to life with limb loss
• Post Sepsis Syndrome (PSS) and how it affects survivors, including physical, cognitive, and psychological aftereffects
• Craig’s decision to step down from his role as MP and his journey back to work after surviving sepsis
• How Craig’s new position in the House of Lords allows him to advocate for sepsis awareness and improved care – including better access to prostheses
• Socioeconomic disparities in sepsis outcomes and what needs to be done to address them
• UKST’s three key asks of the government during Sepsis Awareness Month: measuring sepsis care performance, integrating rapid diagnostics, and raising public awareness of sepsis symptoms and support services

Tune in for an inspiring conversation and insights that shed light on the realities of life after sepsis and the urgent need for change.

You can learn more about sepsis and UK Sepsis Trust’s ‘Step Up’ campaign by visiting sepsistrust.org  

A Mother’s Mission: Group B Strep Support’s Jane Plumb on prevention and the power of charity collaboration

In episode thirteen of Sepsis Voices, UKST’s Founder & Joint CEO Dr Ron Daniels is joined by Jane Plumb MBE, Founder and CEO of Group B Strep Support, for an episode released during Group B Strep Awareness Month.

Group B Streptococcus is the leading cause of severe infection including meningitis in newborns, and Jane knows this all too well, having tragically lost her son, Theo, to it. Since Theo’s death, Jane has been at the forefront of advocacy and education efforts to combat this usually preventable infection.

Like any infection, left untreated Group B strep can progress to sepsis – therefore it’s vital that our two organisations work together to raise awareness in the hope of ending preventable deaths from these conditions.

The episode covers:

• Jane’s family’s story
• What Group B strep is and how it affects adults and children
• What expectant parents should know about Group B Strep – including managing the infection risk to newborns during pregnancy, labour and the early months after birth
• Group B Strep Support’s e-learning for healthcare professionals
• Group B Strep Support’s campaign for better data collection
• How UKST supported this campaign
• How Group B Strep Support will work with the new Government to enact change
• Opportunities for charity collaboration on infection management
• Incidence – how many people are affected by Group B Strep in the UK each year

You can find out more about Group B Strep Support’s work via their website: https://gbss.org.uk/ 

And as ever, you can learn more about sepsis or get support from UK Sepsis Trust at https://sepsistrust.org/  

Pancreas predicaments: Exploring the interplay of chronic kidney disease, diabetes and sepsis with Kidney Care UK’s Deborah Duval

In the twelfth episode of Sepsis Voices with Dr Ron, Dr Ron Daniels is joined by Deborah Duval, managing editor of Kidney Care UK’s quarterly magazine, Kidney Matters, and head of the charity’s Kidney Kitchen.

As a Type 1 diabetic living with chronic kidney disease (CKD), and two-time sepsis survivor, Deborah is uniquely placed to speak to the interrelationship of the conditions, and what our organisations are doing to work together to improve sepsis outcomes for at-risk patient groups.

In this is episode, released in time for Diabetes Awareness Week (10^th-16^th June), the pair discuss:

- The differences between Type 1 and Type 2 diabetes, and the treatments for these conditions

- Deborah’s organ transplant journey – including connecting with donor families through mutual consent

- Risk factors that predispose kidney patients and diabetics to infection, and therefore sepsis  

- Deborah’s sepsis experiences, which resulted in life support

- What UKST and Kidney Care UK are doing in partnership to raise awareness of sepsis

- How sepsis can result in acute kidney injury, which needs to be treated with dialysis

- The amazing work of Kidney Care UK to support people with CKD and acute kidney injury

If you’d like to access Kidney Care UK’s amazing resources, head to their website: https://kidneycareuk.org/

If you’re looking for support following sepsis, whether you’re a survivor, carer or you’ve been bereaved by the condition, head to UKST’s website: https://sepsistrust.org/

Moving Forward: Surviving sepsis and overcoming mental health challenges

To mark Mental Health Awareness Week (13-19^th May), episode 11 of Sepsis Voices with Dr Ron delves into the often-unseen mental health impact of sepsis with two remarkable guests, Taz Hoesli and Naj Devgun.

Tune in to this empowering episode for an enlightening discussion on mental health, resilience, and the journey to healing.

The guests:

• Recount their sepsis stories
• Share the profound mental toll of prolonged hospital stays, including the onset of Post Traumatic Stress Disorder
• Talk about how not being able to move their bodies in the same way post-sepsis affected their mental health
• Share how Functional Neurological Disorder affected them (Naj)
• Talk about how hair loss affected their self-esteem (Taz)
• Discuss how their support networks and professional interventions helped in their recovery journeys - including UKST's support services
• Share why it was important to them to be open about the challenges they have faced with others on social media and their personal circles

Dr Ron concludes by reminding listeners of the UK Sepsis Trust’s free support services, which include 1:1 calls with a support nurse; online and face-to-face support groups, and Facebook support & connect groups for sepsis survivors or the bereaved.

 

Access sepsis support today: https://sepsistrust.org/get-support/

 

If you or someone you know is struggling, you can access free mental health support:

https://www.samaritans.org/

https://www.mind.org.uk/

https://www.thecalmzone.net/

Ombudsman insights: A decade of challenges and achievements in sepsis care

In the tenth episode of Sepsis Voices with Dr Ron, UKST’s Founder & Joint CEO Dr Ron Daniels welcomes Rob Behrens, Parliamentary and Health Service Ombudsman, and Chair of the organisation, to share his thoughts on the evolving landscape of sepsis care.

As Rob approaches the end of his tenure, they reflect on the changes since the Ombudsman's groundbreaking sepsis report, 'A Time to Act,' in 2013.

They discuss improvements in sepsis detection, management, and patient outcomes over the past decade, as well as key takeaways from the Ombudsman's latest report, 'Spotlight on sepsis: your stories, your rights.'

The pair also cover:  

• Healthcare providers' responses to Ombudsman recommendations and barriers hindering implementation.
• Insights on driving systemic change and promoting patient safety during Rob's tenure.
• Recent updates to NICE sepsis guidelines and their significance for healthcare professionals.
• Necessary changes within the NHS and recommendations for sustained improvement in sepsis identification and treatment protocols.
• Addressing the balance between urgent treatment and antimicrobial stewardship in sepsis cases.
• The role of public awareness and education in improving sepsis outcomes.
• Rob’s advice for his successor

Visit www.ombudsman.org.uk to read the two sepsis reports and https://sepsistrust.org/professional-resources/ for UKST’s range of clinical tools and e-learning.

Collaborating for compassionate end-of-life care: UKST and Marie Curie on treating cancer and sepsis in palliative settings

In episode nine of 'Sepsis Voices with Dr Ron', UKST’s Founder & Joint CEO Dr Ron Daniels sits down with Dr Siwan Seaman, a Consultant at the in-patient unit at the Marie Curie hospice in Cardiff and the Vale, and recently appointed Medical Director at the hospice.

Marie Curie is the UK’s leading end of life charity. While they deal with patients with a range of life-limiting conditions, this episode focuses on cancer and sepsis, given that it was World Cancer Day on 4^th February and King Charles III has recently been diagnosed with cancer.

The pair discuss:

• The intricate link between cancer and sepsis, unveiling pertinent risk factors
• The evolving landscape of coding on death certificates and its impact on understanding the correlation between these conditions
• Collaborative efforts between UKST and Marie Curie in developing a palliative care tool tailored for clinicians attending to hospice patients exhibiting sepsis red flags
• The paradigm shift ushered in by more acute interventions for individuals with life-limiting illnesses.
• The nuanced challenges in identifying and managing sepsis within the realm of palliative care, navigating the delicate balance between intervention intensity and prioritising patient comfort and quality of life
• The crucial involvement of patients and their families in decision-making regarding sepsis management, intricately woven within the framework of end-of-life care
• The promising potential of technology in augmenting sepsis recognition and management

The palliative care tool discussed in this episode is available for use across all hospice settings, not limited to Marie Curie's nine hospices, access it here: https://sepsistrust.org/professional-resources/our-clinical-tools/marie-curie-the-uk-sepsis-trust/

If you’ve been affected by sepsis, get support from UKST’s specialist support nurses: https://sepsistrust.org/get-support/

Learn more about Marie Curie: https://www.mariecurie.org.uk/

From Farm to Fork: Tackling the AMR crisis in farming beyond Veganuary 2024

In 2024’s first episode of Sepsis Voices with Dr Ron, Dr Ron Daniels is joined by Lindsay Duncan, who is World Animal Protection UK’s Farming Campaigns Manager.

Released in time for Veganuary, and following the recent publication of World Animal Protection’s report ‘Is factory farming killing us?’, the pair discuss the very real global threat of antimicrobial resistance and how consumer dietary habits will be vital in combatting the problem.

Do you have to go vegan to make a difference, or could giving greater consideration to the type and quality of meat we eat be a solution? Listen and find out! 

The pair discuss:

• The fact that by 2050, an estimated 10 million deaths per year globally will be caused by superbugs (bacteria that are resistant to the antibiotics normally used to treat infections), with an overall economic cost of US$100 trillion.
• How and why antimicrobials are used in farming in the UK, and globally
• How the overuse of antimicrobials in animal farming contributes to the spread of superbugs and reduces the effectiveness of antibiotics for treating the infections these superbugs cause in both humans and animals – with World Animal Protection’s report finding that almost 2000 human deaths in the UK can be attributed to the overuse of antibiotics on factory farms
• How consumers, supermarkets and governments can each play a part in reducing meat consumption to sustainable levels – even if you aren’t doing Veganuary!

Read the report: https://www.worldanimalprotection.org.uk/our-work/farming/superbugs

 

Find out more about World Animal Protection’s work: https://www.worldanimalprotection.org.uk/

 

Learn more about UKST’s attitude to antimicrobial stewardship: https://sepsistrust.org/about/about-the-charity/